| HOME | CONTACT US | ABOUT US | |
 |
The Disabled Workforce
A Resource Guide to Disability Statistics for Policy Uses
General
1. DisabilityStatistics.org—An online resource for U.S. disability statistics
www.DisabilityStatistics.org
Cornell University, School of Industrial and Labor Relations
331 Ives
Ithaca, New York 14853
Andrew Houtenville, Ph.D.
Phone: (607) 255-7727
Fax: (607) 255-2763
TTY: (607) 255-2891
E-mail: DisabilityStatistics@cornell.edu
Beginning October 2003, funded by NIDRR, the DisabilityStatistics.org website condenses several data sources into a single, user-friendly, accessible, Internet resource. It also provides essential background on key issues related to disability statistics.
2. (Former) Disability Statistics Center at University of California—San Francisco
Contacts discontinued, but web site remains.
Through September 2003, the NIDRR-funded Center produced and disseminated policy-relevant statistical information on the demographics and status of people with disabilities in American society. Research materials and reports are still available on the website.
3. Inter-agency Subcommittee on Disability Statistics (ISDS)
David Keer, M.A.
Program Specialist, NIDRR
400 Maryland Avenue, SW
Washington, DC 20202
Phone: (202)205-5633
Fax: (202) 205-8515
E-mail: david.keer@ed.gov
Paul Placek, Ph.D.
Supervising Statistician, NCHS
6525 Bellcrest Road
Hyattsville, MD 20782
Phone: (301) 458-4437
Fax: (301) 458-4022
E-mail: pjp2@cdc.gov
The ISDS is a subcommittee of the ICDR—see InfoUse: Assistive Technology Data Collection Project for details. With members from 20+ Federal agencies and non-governmental researchers, including WHO, ISDS meets monthly by teleconference, and at sites in D.C., Hyattsville, Baltimore, and other locations, for discussion of statistical issues and terminology related to disability. Minutes of ISDS meetings are disseminated to approximately 600 researchers.
4. Access to Disability Data: An InfoUse Project
www.infouse.com/disabilitydata
InfoUse
Susan Stoddard, Ph.D.
2560 Ninth Street, Suite 216
Berkeley, CA 94710-2566
Phone: (510) 549-6520
TDD: (510) 549-6523
Fax: (510) 549-6512
E-mail: info_use@infouse.com
InfoUse has prepared this site for use in research on disability in the United States as a product of the Center on Access to Disability Data (NIDRR-funded). This site is based on information published in NIDRR Chartbooks released from 1996-1999.
5. North American Collaborating Center (NACC) on the International Classification of Functioning, Disability and Health (ICF).
www.cdc.gov/nchs/about/otheract/icd9/nacc.h tm
Marjorie S. Greenberg
WHO Collaborating Center for North America
NCHS, Centers for Disease Control
3311 Toledo Road, Room 2413
Hyattsville, Maryland, 20782
Phone: (301) 458-4245
Fax: (301) 458-4022
E-mail: msg1@cdc.gov
The NACC is located at the NCHS and works in close collaboration with the Canadian Institute for Health Information (CIHI) and Statistics Canada. NACC maintains liaison with WHO on implementation and maintenance of the set of International Classifications.
6. National Dissemination Center for Children with Disabilities (NICHY)
www.nichcy.org
P.O. Box 1492
Washington, DC 20013
Phone/TTY: (800) 695-0285
Fax: (202) 884-8441
E-mail: nichcy@aed.org
The dissemination center is funded by the U.S. Department of Education, OSEP, and serves as a central source of information on IDEA, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.
Listservs
1. Disability-Research Listserv
Centre for Disability Studies, University of Leeds
LS2 9JT, England
Phone: +44 113 343 4414
Fax: +44 113 343 4415
E-mail: disability-studies@leeds.ac.uk
Subscription information and archives available at:
www.jiscmail.ac.uk/lists/disability-res earch.html
This international discussion list (started in December 1994), is the largest of its kind. It provides a forum for discussion on all aspects of research within Disability Studies—theoretical, political and practical—with a focus on philosophy, sociology, political economy, etc, within a social model approach.
2. Disability Policy Listserv
Tri-County Patriots for Independent Living
69 East Beau Street
Washington, PA 15301
Phone: (724) 223-5115
TDD: (724)228-4028
Fax: (724) 223-5119
To subscribe:
Send e-mail to majordomo@tripil.com containing the following line in the body:
subscribe dpolicy
Post to the listserv at:
Archives available at:
This list provides members key source documents and articles on emerging issues in the disability community. It is sponsored by the Dimenet, a national computer networking system that is accessible at multiple locations and provides access for communications and information sharing among individuals involved in the disability rights and independent living movements, and the Tri-County Patriots for Independent Living (TRIPIL), a Southwestern PA group which promotes independent living for and by individuals with disabilities.
3. Disability Studies Network Listserv
Teachers College, Columbia University
ATTN: Professor D. Kim Reid or Professor Lynne Bejoian
520 West 120th St.
New York, 10027
Phone: (212) 678-3000
To subscribe:
Send request to Dermot Foley, dermotfoley70@yahoo.com.
Post to the listserv at:
The Disability Studies Network (DSN) is a group of academics and other professionals from theater, law, medicine, etc, who work throughout the NY-NJ-CT tri-state area. The DSN provides an opportunity for networking and collaboration on interdisciplinary study of disability within a socio-political context, and promotion of Disability Studies in academia and the larger society.
Journals (Including Special Issues of Journals)
1. Disability Studies Quarterly (DSQ)
DSQ is the journal of the Society for Disability Studies (SDS). It is an online, multidisciplinary, and international journal of interest to social scientists, scholars in the humanities, disability rights advocates, creative writers, and others concerned with the issues of people with disabilities.
2. Journal of Disability Policy Studies
The only journal devoted exclusively to disability policy topics and issues. Published by PRO-ED, Inc.
3. Disability and Society
www.tandf.co.uk/journals/titles/09687599.asp
Disability & Society is an international journal providing a focus for debate about such issues as human rights, discrimination, definitions, policy and practices. Published by the Taylor and Francis Group.
4. Special Issue of Health Care Financing Review
Spring 2003 issue (Volume 24, No. 3) "Conference Proceedings on Measuring Functional Status"
www.cms.hhs.gov/review/03spring/
The Health Care Financing Review is the subscription journal of the Centers for Medicare & Medicaid Services (CMS). In this special issue, articles focus on collection and classification of functional status for payment and quality purposes
Professional Associations
1. Society for Disability Studies (SDS)
www.uic.edu/orgs/sds/
Carol J. Gill, Ph.D., Executive Officer, SDS
c/o Dept. of Disability & Human Development
Univ. of Illinois at Chicago (MC 626)
1640 W. Roosevelt Rd. #236
Chicago, IL 60608-6904
Phone/TTY: 312-996-4664
Fax: 312-996-7743
The Society for Disability Studies works to explore issues of disability and chronic illness from scholarly perspectives. Members include social scientists, health researchers, and humanities scholars as well as those active in the disability rights movement.
2. Disability Forum, a section of the APHA
www.ncpad.org/DFSPIG
APHA
800 I Street, NW
Washington, DC 20001
Phone: 202-777-2400
TTY: (202) 777-2500
Fax: 202-777-2534
The Disability Forum is a "Special Primary Interest Group" of the APHA focusing on issues of disability and public health since 1988. It organizes sessions at APHA's annual conference that present current research, including disability statistics; issues a newsletter; and develops positions for APHA's policy process.
3. American Statistical Association (ASA), Committee on Statistics and Disability
www.amstat.org/c omm/ index.cfm?fuseaction=commdetails&txtComm=CCNMS12
Committee on Statistics and Disability
American Statistical Association
1429 Duke Street
Alexandria, VA 22314-3415
Phone: (888) 231-3473, (703) 684-1221
Fax: (703) 684-2037
E-mail: asainfo@amstat.org
The Committee aims to advance the use of statistics in disability research, including the demography of disabled people; and to support disabled members and potential members of the ASA by working to eliminate barriers within the organization and within the scientific, business, and government communities.
4. Code of Standards and Ethics for Survey Research
www.casro.org/codeofstandards.cfm
The Council of American Survey Research Organizations (CASRO)
170 North Country Road, Suite 4
Port Jefferson, New York 11777
Phone: 631-928-6954
Fax: 631-928-6041
E-mail: casro@casro.org
CASRO is the trade association of survey research businesses, representing over 200 companies and research operations in the United States, Canada, and Mexico. This report details mandatory standards for all CASRO members in the practice of conducting survey research. It has been organized into sections describing the responsibilities of a Survey Research Organization to Respondents, Clients and Outside Contractors and in reporting study results.
5. American Sociological Association (ASA), Committee on the Status of Persons with Disabilities in Sociology
www.asanet.org
ASA—General
Phone: (202) 383-9005
TTY: (202) 873-0486
Fax: (202) 638-0882
E-mail: executive.office@asanet.org
The Committee meets each year at the annual convention and addresses removal of disability-related barriers to participation by sociologists in meetings and other professional venues and opportunities.
6. American Association for Public Opinion Research
*Note: This association is not disability-specific, but provides standards for reporting survey data in general, which may be of importance in evaluating reports of disability statistics.
www.aapor.org
The American Association for Public Opinion Research (AAPOR)
P. O. Box 14263
Lenexa, KS 66285-4263
Phone: (913) 310-0118
Fax: (913) 599-5340
E-mail: AAPOR-info@goAMP.com
See "Guidelines and Tools for Documenting Survey Results" section of the web site; includes "Standard Definitions: Final Dispositions of Case Codes and Outcome Rates for Surveys. 3rd edition." This document outlines how to understand reported response rates in survey research. AAPOR is an association of about 1,600 individuals who share an interest in public opinion and survey research.
Centers and Studies Specific to Assistive Technology
1. Community Research for Assistive Technology
http://www.atnet.org/CR4AT/home.html
660 J Street, Suite 270
Sacramento, CA 95814-2495
Phone: (916)325-1690
TTY: (916)325-1695
Fax: (916) 325-1699
A project of the California Foundation for Independent Living Centers and NIDRR with the California State University, Northridge - Center on Disabilities. Its goal is to increase the capacity of the independent living community to work with its members and stakeholders to collect research data on access and use of AT.
2. Center for Assistive Technology
cat.buffalo.edu
School of Public Health and Health Professions
University at Buffalo, SUNY
322 Stockton Kimball Tower
Buffalo, NY 14214-3079
Phone: (800) 628-2281; (716) 829-3141
Fax: (716) 829-3217
The Center for Assistive Technology conducts research, education and service to increase knowledge about assistive devices for persons with disabilities.
3. Technology Assessment of the U.S. Assistive Technology Industry (February 2003)
www.icdr.us/atreportweb
Office of Strategic Industries & Economic Security Analysis Division
14th Street and Constitution Avenue, NW
U.S. Department of Commerce
Washington DC 20230
Bureau of Industry & Security
Margaret Cahill
mcahill@bis.doc.gov
(202) 482-8226
Stephen Baker
sbaker@bis.doc.gov
(202) 482-2017
Brad Botwin
bbotwin@bis.doc.gov
(202) 482-4060
The study was undertaken as a result of a February 1998 request from Katherine D. Seelman, Ph.D., then the director of NIDRR at the U.S. Department of Education and C. Dan Brand, then Chairman of the FLC.
4. Assistive Technology Devices and Home Accessibility Features: Prevalence, Payment, Need, and Trends. (Advance Data, No. 217, Sept. 16, 1992)
www.cdc.gov/nchs/data/ad/ad217.pdf
Vital and Health Statistics of the CDC
National Center for Health Statistics (NCHS)
Office of Information Services
Hyattsville, MD, 20782
Phone: (301) 458-4000
Presents findings from the 1990 National Health Interview Survey Supplement on Assistive Devices (NHIS-AD).
5. Study on the Financing of Assistive Technology Devices and Services for Individuals with Disabilities (March 4, 1993)
http://www.ncd.gov/newsroom/publications/1993/assistive.htm
National Council on Disability (NCD)
1331 F Street NW, Suite 1050
Washington, DC 20004-1107
Phone: (202) 272-2004
TT: (202) 272-2074
Fax: (202) 272-2022
Study with recommendations, that was funded under Title II of the Technology-related Assistance for Individuals with Disabilities Act of 1988 (P.L. 100-407), referred to as the Tech Act.
6. Federal Policy Barriers to Assistive Technology (May 31, 2000)
www.ncd.gov/newsroom/publications/2000/assisttechnology.htm
National Council on Disability (NCD)
1331 F Street NW, Suite 1050
Washington, DC 20004-1107
Phone: (202) 272-2004
TT: (202) 272-2074
Fax: (202) 272-2022
Report required by the Assistive Technology Act of 1998 (P.L. 105-394), Title II, Section 202, describes the barriers in federal assistive technology policy to increasing the availability of and access to assistive technology devices and services for people with disabilities.
7. Assistive Technology Survey results: Continued Benefits and Needs Reported by Americans with Disabilities (September 27, 2001)
www.ncddr.org/du/researchexchange/v07n01 /atpaper
NIDRR
U.S. Department of Education
400 Maryland Avenue, SW
Washington, DC 20202
Dawn Carlson, Ph.D., Nathaniel Ehrlich Ph.D., Betty Jo Berland, Ph.D., and Nell Bailey, M.A.
Phone: (202) 401-2068
E-mail: dawn_carlson@ed.gov
Or
Phone: (703) 525-6686 x305
E-mail: nbailey@resna.org
This study used data drawn from Phase 1 of NHIS-D to estimate the number of persons with disabilities who use or need AT/IT devices and services; how they select and acquire AT/IT devices, and interact with agencies that deliver AT/IT services at the State level. It suggests strategies to enhance the AT/IT service delivery system.
8. NIDRR Research Agenda, Chapter 5 - Technology for Access and Function Research
www.ncddr.org/rpp/techaf/lrp_ov.html
National Institute on Disability
and Rehabilitation Research (NIDRR)
400 Maryland Avenue, S.W.
Washington, DC 20202-2572
Voice:(202) 205-8134
TTY: (202) 205-4475
NIDRR's research agenda addresses a broad range of technology, including systems of public technology such as telecommunications and the built environment, and orphan technology for individuals. The NIDRR technology research program also encourages universal design practices.
9. Falling Through the Net: Toward Digital Inclusion (2000)
www.ntia.doc.gov/ntiahome/digitaldivide/
National Telecommunications and Information Administration (NTIA)
U.S. Department of Commerce
1401 Constitution Ave. N.W.
Washington, D.C. 20230
Voice: (202) 482-7002
This report looks at computer and internet access by household, including a section on use and access by people with disabilities. It contains a number of charts on computer and internet use by people with disabilities.
Acronyms:
AAPOR American Association for Public Opinion Research
APHA American Public Health Association
ASA American Sociological Association
ASA American Statistical Association
AT Assistive Technology
AT/IT Assistive Technology/Information Technology
CASRO Code of Standards and Ethics for Survey Research
CDC Centers for Disease Control and Prevention
CMS Centers for Medicare and Medicaid Services
DHS Department of Health Services
DSQ Disability Studies Quarterly
FLC Federal Laboratory Consortium for Technology Transfer
ICD International Classification of Diseases
ICDR Interagency Committee on Disability Research
ICF International Classification of Functioning, Disability and Health
IDEA Individuals with Disabilities Education Act
ISDS Interagency Subcommittee on Disability Statistics
NACC North American Coordinating Center
NCD National Council on Disability
NCHS National Center for Health Statistics
NHIS-D National Health Interview Survey—Disability Supplement
NIDRR National Institute on Disability and Rehabilitation Research
NTIA National Telecommunications and Information Administration
OSEP Office of Special Education Programs
RRTC Rehabilitation Research and Training Center
SDS Society for Disability Studies
WHO World Health Organization
- Centers for Independent Living
- Developmental Disabilities
- Disability Resource Organizations with Toll Free Numbers
- Health Information Resources In The Federal Government Sixth Edition
- Im Adapting -- A directory to individual state Disability services and programs as well as Advocacy & Protection assistance.
- Missouri Governor's Council on Disability Resource Directory
- Native American Rehabilitation
- National Organizations
- Region II Independent Living Centers
- Senate Disability Policy Sub-Committee
- Service Centers for Augmentative Communication and Computer Access